I
was THIS close to turning off and turning in for the night. Suddenly
it starts really raining which immensely relaxes me and lets my mind
wander. (OH NO, right!?) I read an article the other day that I
thoroughly enjoyed. It is the “spoon” theory for relating to
unseen medical conditions, in the example given it is Lupus. However,
it relates to many more illnesses than just Lupus, but it is
comparable to many other illnesses.
You
may look at a person and see a normal, happy, healthy individual. You
may see a normal body with healthy features. Some people have visible
illnesses, whether it is a skin condition or abrasion, missing or
unusable limbs, utilization of mobility aides, deformities,
communication problems, etc., the list really is endless. Even these
people with “visible” conditions may struggle with far more than
what our eyes can see. In a world where we rely so heavily on our
vision to aide our routine, we become dependent on what our eyes see
and interpret. We know (thanks to the State Farm commercial) that
“everything you read on the internet has to be true” because it
is a satirical commercial making the statement laughable and untrue.
The same is true with how we see and judge those around us. We should
be training our brains to learn “everything you see must be right”
is an untrue statement.
I
know for the most part (withholding my unique quirks like crazy
fashion, nail art, strange reasoning, etc.) I look like a normal
person without limitation or defect. I also FEEL like a “normal”
person for the most part. The things that make me different have
become such a part of my everyday life that I no longer realize they
are abnormal. Every morning, I have to sit momentarily to wait for
the ice-pick pains to reside. Then I have to “carefully” stumble
out of bed because I normally feel like I've had about three shots of
whiskey or the likes. After about 10-15 minutes, I've regained my
equilibrium and can function normally but generally feel like I only
slept about 2 hours, regardless of whether it was 6 or 12 or anything
in between. This passes after another 15-30 minutes and I can
actually start my day. My day goes fairly smoothly without much fuss.
Unless of course it is sunny out. Bright sun causes some strain from
the eyes and neck, resulting in a migraine by the end of the day. Or
if I have to turn from looking back while driving a lot (highway
changing lanes, turning into traffic right or left, etc.) Then there
are the days that are stressful causing me to clench my teeth, tense
my neck, or just be anxious in general that cause frequent ice-pick
pains. The more ice-pick pains, the more migraines. This is day in,
day out, everyday regardless of work, weekends, etc.
((Ice-pick
pains: sharp pains in the forehead feeling similar to what I imagine
a small minion using an ice-pick in my brain would feel like. Imagine
a short frequent burst of “brain-freeze.” The actual cause is
from a blocked flow of cerebral spinal fluid in my posterior fossa at
the base of my skull and top of neck. How was that for technical?))
Beyond
what feels like normal everyday life, I get to watch my other
abilities and skills diminishing. Typing this has taken me twice as
long as it would have 2 years ago because I keep missing letters or
hitting the wrong key. If I walk through a parking lot, I look like I
just left the bar after a long evening of drinking and stagger
towards my destination. I walk into walls, doors, objects, etc.
usually pretty gracefully. I like to think people don't notice, but I
pray some of those around me are a little more perceptive, for their
own sake and safety if none else! I have lost so much dexterity that
I can barely open a new bottle of pop or packaged candy (where you
have to tear open the bag.) I come incredibly close to falling in the
shower at least 6 out of 7 times a week. I can't remember the events
of two days ago. This seems strange, even for me to say it. I can
remember HUGE events...sometimes. I can't oftentimes place when/where
something actually happened if I do remember. (Example-I know we had
Sonic for dinner this week, but I have no idea what day it was.) I
also have little concept of what the date is or how long it takes to
get from place to place.
Why
does this all matter? Because I struggle with these things EVERYDAY.
I struggle with remembering, did I do this yesterday? Have I got it
done yet or do I still need to finish it? Can I open this on my own,
or will I have to wait for the hubby to get home and rescue his
damsel in distress? I have to check and recheck that I've done the
necessary tasks for the day? Can I shower without someone home or
will I fall and need help? These are the struggles that I personally
face everyday that hide beneath a “normal” exterior and a smile
upon my face. I keep a positive attitude and outlook because being
upset and angry won't change anything. This is the battle that I've
been given to walk through and learn from.
I
don't share my story for pity or sadness or guilt or any other reason
than to encourage people to be open and honest. No matter how we
look, act, react, etc., we don't have it all together. No one ever
has it completely together. We all have struggles, we all have
hurdles, we all have issues. The medical doctor you see who treats
you and helps you get well, doesn't have it all together. The police
officer who pulls you over to remind you to slow down and follow the
rules to protect you, doesn't have it all together. The therapist
that helps you deal with your struggles, doesn't have it all
together. The dog groomer that loves your pets and treats them so
carefully, doesn't have it all together. No one has it all
together...ever.
There
is an exceptional reason too. Don't be discouraged that you are
seeking the “all-together lifestyle” because it quite simply
isn't attainable. We cannot have it all until we have Him. We cannot
have it all until we are Home. We strive for bigger, better, and
right. All those things lie in His Kingdom alone, not on this Earth.
So we strive for the best we can to honor him and help each other
find the path Home.